category: Down syndrome




Leah and Roddy waited patiently for their baby to be a part of their lives. Although their lives were changed the moment she came into it, they embraced their new life with acceptance and optimism. They took on Laiken’s first year with strength, compassion, pride, and a whole lot of LOVE.

It’s always a blessing to see people with a real desire to be parents be given the opportunity to raise and nurture a child, especially a child as precious as Laiken.  Both the parents and child will only benefit from the beautiful relationship that they share. Together they make one special family.  

Here is our first family showography that we created to share the Neff’s united love.  Enjoy!!!





I was incredibly excited when Leah contacted me shortly after we photographed our Down syndrome portrait event. She told me all about her sweet little girl, Laiken, who also (as I like to say) happens to be gently enhanced. After hearing and reading all about her (I love family blogs!!!) I couldn’t wait to photograph her and her families love for each other.

When we met, I sort of fell in love. I think that is everyone’s natural reaction after immediately meeting her. She was even more precious than I imagined she would be. Andre and I ate up every one of her smiles. every content little expression. every pure feeling she had towards her Mama and Dada… and herself when looking back through her mirror. Laiken’s energy is truly contagious. She was a pure delight to be around.

We loved getting to know the Neff family. After only a few minutes, there were no doubts to the depth of their love. Love as it should be…Unconditional, Intense and FUN. Laiken is going to do great things with the love and support that she has from her parents.


check out this adorable smile.

a little peek-a-boo play. Love it!

I enjoy capturing moments like this. A love force that is to be reckoned with.


I’m so proud of you Laiken! I look forward to watching you continue to grow and flourish.

Yes, that’s right, this is only part 1 of this families session. Check back Thursday for a nice surprise, Andre style.





Shooting Joshua was so much fun. He was bold and willing to take risks outside of the norm. He had a comfortable nature about him and was filled with audacious spunk.

The fun continued throughout our shoot and at the end of the session he handed me a single flower and gladly told Andre that he thought I was pretty, and Andre agreed. :) (yes, I’m blushing… as I was then.)

Joshua is a National Special Olympics Athlete that is a member of Team Texas. He will compete in the Bocce Ball Competition in the 2010 USA National Games in Nebraska. There is no doubt that he will do well during these National Games. He is a driven, motivated, strong, and a thoughtful man.

I would love to direct you to his fundraising website for contributions toward his trip to Lincoln, Nebraska. Please visit his firstgiving website to donate today. He’s a little over $2,000 away from his goal.

BRING HOME MORE GOLDS JOSH!!! :-)





The day was crisp and promising as we prepared to photograph our much anticipated Down syndrome portrait event. We arrived to the location eager to meet our subjects for the day. First up was little miss sunshine. She shared her contagious personality from the start and gave of herself graciously. She warmed my heart with each click of the shutter and of each of her “will light up the world” smiles. She shared her true personality and didn’t hold anything back. Truly a perfect way to start the day.

Meet Miss Audrey. I will forever hold photographing her in my heart and continue to feel her genuine hug wrapped around me.

Ok, so I have a lump in my throat and my palms are sweaty as I type this part about sharing the most beautiful letter that I received from Audrey’s mom, who was celebrating her birthday on the day of the portrait event. I don’t know that I’m worthy of her writings, but I have to admit that I’ve cried a few times reading it and LOVE that she gets it! She really gets it! So feel free to read on, she’s Ok with it, as am I. For me, humbly so of course!

Dear Jenna,

I’m Audrey’s mom, Katrina, from the Ds Appreciation Portrait Event.  There are so many things I’ve wanted to share with you and Andre since that day, I don’t even know where to begin. 

I have to tell you Jenna, that I was overwhelmed when I first went onto your website, saw your beautiful work, and read a little about you on your blog.  My sister Karen (who lives in Santa Fe) is also a self-taught, beautiful soul, photographer, so I have a deep appreciation for what a special gift you have.  What I felt as I looked at picture after picture, before I had even had a chance to read anything you had written on your blog, was exactly what you later wrote about your experience photographing the children for the Portrait Event.  It is obvious that you do touch people on a deep level; you just open a little window (knocking first, of course) and look inside to their inner beauty and uniqueness.  Jenna, I cried like a baby, and do every time I think about what you wrote on your blog when you said, “Music plays in my head, we begin our conversation in our secret language . . .”  You have no idea – well, maybe you do, ’cause you’re you – but that is the kind of gift of great composers like Mozart and Beethoven, only you see and create, where they heard and composed.  Not to sound “woo-woo” or anything, but it just grabbed my heart to know that about you, and I so totally wanted to have the opportunity to have Audrey behind your lens.   As her mother, I feel so much love for her that I’d give anything to be able to capture in an image what you can, so I could show others what I see through my eyes.  So when you emailed that we were going to get to be in the photo shoot, I had to stand up and walk around and then sit back down, if you know what I mean!!
 
I felt like a star-struck fan when I met you and Andre, and the funniest thing just popped out of my mouth; I said to Andre that it isn’t often that you have the opportunity to meet someone who sees and appreciates the uniqueness and beauty of your child, and actually wants to spend time with them.  Watching the two of you work also made me cry.  It was beautiful.  I’m only halfway kidding you when I say that I’ll just bet if I had a little bit more of a discerning eye, I would probably be able to see the aura that radiates from you both.  Maybe it’s just your inner happiness, your joy for life – “your zeal” . . . but I’ll just bet that when I get to see an angel, I’ll see that same light shining from inside them.
 
AND THEN, after I had tried several times to sit down and comment on your blog, I got the link to the “Behind the Scenes” clip.  Oh boy, there I went again.  Crying like a baby.  But it wasn’t just me; my husband Michael watched it and tears rolled down his cheek as well.  That was validating for me.  I emailed it to all of my family and closest friends.  But honestly, while I received back nice comments from most, I knew and could tell that the emotion the images and the music evoked come more from a place of “knowing,” deep inside, what the life of a parent of a special child like ours is like.  Not only knowing their child’s unique beauty, but the other side as well – all of the difficulties, prejudices, lack of understanding and compassion from people who lack information, and a desire to know.  ARD meetings instead of ballet class, therapies instead of sleep overs, and a hundred other emotions.  Having that experience in my back pocket makes my appreciation of your vision all the more so.  I cannot wait to see all of the images you captured, because I want them all around my house.  But I have to tell you, the image that is imprinted in my brain and on my heart came from the video clip where the light was behind Audrey as she was bending forward and the breeze was blowing her hair and the light was shining behind her.  It was so beautiful!  Even my son commented on it, and he’s not one to dish out compliments, that boy!
 
One of your friends probably said it best when she said that you are such a gift to the disability community.  Like, yeah, and THEN some!!  Thank you, Jenna and Andre, so very, very much for sharing your love and your gifts with us parents.  This opportunity was a huge blessing and the best birthday present I’ve ever had!!!
 
Bless you both and your precious family,
Love,
Katrina Adams

Thank you Katrina for sharing such a beautiful email with me. It touched my heart in more ways than you know. It validated so much for me and gave me more fuel to work for my goal of sharing the beauty of children with Down syndrome with the world. I am forever grateful for your time and participation, but most of all for you sharing your beautiful daughter with us!





awe, we couldn’t help ourselves. after returning from a wonderful morning with the Neff family, we just had to share this sweet sneak peek of the adorable Laiken. i wanted to keep her all for myself, but mom and dad weren’t having it. more to come in a few weeks.





As parents of a child with Down syndrome (Ds) it captivated us to look into familiar eyes, for our Ds Appreciation Portrait Event, doing our best to capture the true beauty of each person for who they are.  After we finished our long but thrilling day, we rushed home to review the photographs.  Warmth filled our hearts to see how amazing these special Gifts truly are.  It allowed us to reflect on how much one extra chromosome has changed our lives, entirely…for the better!  

We have been so privileged to go on this exhilarating roller coaster ride of emotions and self reflections to end-up in a new world almost everyday. What an adventure she has taken us on so far!!! We know that it’s only the beginning and we can’t wait to see how else she will help us evolve in this short life that we live. Only a few are chosen to be a part of this special adventure. We are the LUCKY ones!

We have never seen as much beauty in life and the pureness of a moment until our daughter “rocked our world”.  She has opened our eyes and hearts to a whole new existence that is filled with more joy and love which can never be expressed in words or actions to its fullness. FickleZeal was born because of Lana and all her glory. To be honest my favorite subjects are people with Down syndrome. It’s photographing their incredible beauty and going on the journey of awe and wonder with them. Each shoot is new and each person is unique. More than that each one of them brings out an inner part of me that I didn’t know existed. They awaken a better me!

Andre decided to get some video clips with our point and shoot camera just “cause”. And that just “cause” has turned into this lovely behind the scenes tribute to our day and every lovely person we photographed.

Thank you all for coming out and allowing us to capture your beauty! Photographing you gave us such joy and excitement. You are all dear to us!





In honor of World Down Syndrome Day (Mar 21), we wanted to spend time capturing the beauty of people with an additional 21st chromosome.  So last weekend we were so excited and LUCKY to spend our day with 12 remarkably unique, gracious and lovely people, our daughter included.  I can’t express the joy we had getting to know and photograph each person that came out.

We’ve often said that even though people with Ds may be categorized together because they were born with an extra copy of chromosome 21 in their DNA structure, it does not define them… and this was more than evident throughout our day of shooting.

Here are our FAVS from the day:

Meet Miss A, energetic and spunky!  Perfect start of the day.

MissA

Meet Mr Josh, caring, strong, and filled with personality.

MrJ

Meet Miss E, on the go & free spirited.

MissE-2

Meet Miss M, too cool for words.

MissM

Meet Mr M, giving & mischievous.  great combo!

MrM

Meet Miss E, pure sweetness.

MissE

Meet Miss C, knows what she wants!

MissC

Meet Mr H, cuteness overflows him.  It was crazy how much he reminded us of our Lil’ Dez.

MrH

Meet Miss K, shy but SO lovable.

MissK

Meet Miss J, talk about wit and charm.

MissJ

Meet Mr M, such a flirt and conversationalist.

MrM-2

Meet our Little Miss Lana, all that and a bag-o-chips!

MissLana

October is National (America) Down Syndrome Awareness Month.  We look forward to hosting another portrait event then, so if anyone is interested please let us know by commenting below.





Yesterday we celebrated World Down Syndrome Day with Lana.  We’re so thankful for our daughter and the many MANY blessings we’ve experienced because of her.  Since Lana came into our lives we have learned so much about Down syndrome.  The most important being that people who happen to have Down syndrome are just that, people first!   We hope that Lana’s life and ours with her will bring positive awareness and understanding to the world about life with Down syndrome.

In honor of Down Syndrome Awareness month we will be hosting our first Down syndrome appreciation photo day.  If you are interested in having your child photographed in the DFW area by us on 27 March 2010, comment below and email me at info@ficklezeal.com.  There are 10 sessions available, so act fast & please spread the word!

Schedule and Location will be released Thursday.

LanaMar2010_9527