Miss Marley has been a distant Hawaiian friend of ours for over four years. I met Marley’s Mom, Katrina, on the wonderful worldwide web in a not so faraway place called Downsyn.com. It’s an online community of parents and families with children who have Down syndrome. Becoming a part of downsyn.com was filled with so many blessings, including but not limited to: friendships, knowledge, resources, understanding, compassion, gratitude, and sooo much more:-)
As they say, “It takes a whole Village to raise a child.” In some ways, downsyn.com was that community of valuable resources and priceless experienced wisdom. It was where many of us discovered that we were not alone and that our emotional roller coaster(s) were a normal process in understanding our new life with a child that has special needs. It’s where we found out that it was okay to have those indescribable emotions that take over you without a moments notice. It’s where we laughed and cried with sharing milestones and challenges. We found out that we were not alone, and we had a place to speak with people that TRULY GOT IT. The evolution of our new life’s purpose blossomed. We learned from each other and developed together. It helped me to realize that, “I am the Lucky One.” (insert you tube video link).
I’m so thankful to have been chosen to be Lana’s mom and to have been given the opportunity to experience this wonderful life with so many beautiful people. Marley and her family are only a few of those beautiful people that I have had the pleasure of meeting and befriending.
Marley has the coolest (level-headed) demeanor of a child, her age, that I have ever seen. She will quietly observe then find that beauty within…well…everything. At times, it seems like nothing is strange to her. She is extremely giving and gracious. She is sweet, kind and an undeniable friend to all. She is Marley!
When she arrived we were so excited to see her and her growing family. It seemed more like a play-date with good friends than work. Yes, we love our job!!! Marley gave us some unique and fun photos.





Marley and family, Thank you for being a part our day! It was wonderful seeing and catching up with you all.
Now for a flashback from the past… A group of us from downsyn.com were able to meet up in Texas for a Get Together in 2007. I dug up the video that I had put together back then to share our time together. Warning, it’s almost twenty minutes long and the photos are prior-to me becoming a photographer. LOL!
June 15th, 2010 at 12:23 pm
Marley looks wonderful! Great photography!
June 16th, 2010 at 2:21 pm
OMG I love seeing her! She is SOOOO beautiful! And SOOO grown up! Holy cow! Love the vid … brings back so many great memories! They were such babies then! We need to do it again….
June 21st, 2010 at 7:36 pm
Thank you Jim!
Bethany – We’ll do it next year. I can’t wait!!!
July 13th, 2010 at 9:04 pm
LUV LUV LUV her eyes! …you did such a great job – no surprise there.